UK Registered Charity.....

About Butterfly Hugs.

We are about helping families who are suffering and need some practical help and support.

Our charity was born out of tragic circumstances but continues to bring positivity and support to those it helps.

“The simplest acts of kindness are by far more powerful then a thousand heads bowing in prayer.” ― Mahatma Gandhi

Rachel Pocklington heard about Connie and Joe Elson, two children affected by the rare condition MLD. She was compelled to do something to support the family and wanted to do something to help.  She decided to organise a family day and music festival to raise money and awareness of the condition. Rachel asked Sian Hunter to help organise the event, which was mainly planned in the few minutes between dropping children off to school and work.

 

Rachel encouraged the local community to support the event and was overwhelmed by the wonderful response. ‘Joe and Connie Calling’, raised £13,000 and paid for a special orthopaedic bed and ongoing physiotherapy for Connie as well as counselling sessions for Joe. During the planning and research for the event, it was apparent that the remoteness of Cumbria isolated families who needed support.

 

It was at this point that Rachel, Sian and Nicola Elson (Joe and Connie’s mother) decided to set up Butterfly Hugs to remedy this situation. The name Butterfly Hugs is derived from the words of comfort shared with children suffering from MLD. We decided the area the charity supports to South Lakeland and the Furness area so we could remain very much a local charity.

 

We achieved charity in 2016. Butterfly Hugs is a very big venture for all of us and we are driven by the desire that Connie’s life has enabled good to happen by leaving the legacy of awareness and support for children with rare illnesses.

 

The Butterfly Hugs Fund is intended to provide grant type funding for either necessity such as washing machines or respite care. Or to provide family days out for families needing to have some fun. We would also like to provide support by linking families together so that they no longer feel isolated. Every year we will donate 10% of funds raised to three different charities. Butterfly Hugs is run on a voluntary basis and aims to make sure that all of the money raised goes to the people who need it the most.

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Joe & Connie

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